"Wherefore, O ye illumined youth, strive by night and by day to unravel the mysteries of the mind and spirit, and to grasp the secrets of the Day of God." Baha'u'llah
We have begun the second week of taking a break from chemo treatment. Monday, September 8th, will be the first day of Jadan’s third round of chemotherapy. As Jadan progresses through treatment, he has experienced an increase in fatigue and nausea. Managing both can be challenging at times. He continues to immerse his soul in playing guitar and piano. I am instantly filled with gratitude when the house is filled with Jadan’s piano music, especially in the mornings.
Jadan has also been deep diving into his courses: Physics 3, Differential Equations, and piano. His instructors remain available outside regular class time to help accommodate Jadan’s immunocompromised health. When Jadan attends lectures with professors, he wears a mask. Kevin and Jadan often work on problems together at the dining table. I also benefit from Jadan’s learning by being taught formulas and equations that explain reality in space and time. Truly a gift!
Handcrafted bear in turquoise and silver. It symbolizes protection, courage and strength and serves as a spiritual guide.The bear’s qualities are reflected in the Heartline, which illustrates the life force and inner strength of a warrior’s heart.
In a time when so much is unknown about Jadan’s health and the future, one truth infuses us with strength of purpose—the power of love. Love has taken the form of prayers, emails, letters, thoughtful packages, cookies, time with family and visits from friends, bringing soft, cuddly reminders of friendship. Words fall short in expressing how grateful we all are for the continued love and support. The love expressed by family and friends reminds Jadan (all of us) that we are not alone. One of the side of effects of grief and experiencing any form of loss is feeling alone. Symbols, signs and tokens of love give us hope, courage and serve as reminders to persevere in times of tests and difficulties.
Cookies from a dear and precious family.
Anya appreciating beauty in nature.
Jordan and Evelyn bringing tokens of love.
August 30, 2024 – Celebrating last day of radiation treatment.
Being immersed in the power of love reminds me of Laurie and her steadfast courage during her 30 days of radiation treatment. One year ago from August 30th – last Saturday – we surprised her with the biggest balloon we could find. I remember hiding outside, waiting for her and Dave to come out. Several passerbys were hoping they were the recipients of the giant rose balloon and flowers. It is hard to believe so much as changed in such little time. It feels like we lived a lifetime in a year.
Art inspired by love, beauty and knowledge found in nature:
Say: Nature in its essence is the embodiment of My Name, the Maker, the Creator. Its manifestations are diversified by varying causes, and in this diversity there are signs for men of discernment. Nature is God’s Will and is its expression in and through the contingent world. It is a dispensation of Providence ordained by the Ordainer, the All-Wise.— Tablets of Bahá’u’lláh, Lawh-i-Hikmat
A needle applicator that is used to administer blood cell growth medication.
According to Dr. Purdy, Jadan’s oncologist, “Bone pain is good; it means you are making white blood cells.” Last Saturday, just before 4 p.m., Jadan’s robot shot successfully administered the medication that stimulates white blood cell growth. One of the side effects of this process is bone pain, which showed up today. So far, he is managing through the pain quite well. Jadan has also been continuing to do well with food, but has different cravings quite often. He has also been feeling strong enough to go on short walks, avoiding direct sunlight due to his medications being light sensitive. However, since Jadan is a walker and loves being outside, I am keeping a close eye on him.
Jadan had an excellent visit from Anya yesterday. She made him the most delicious apple pie infused with love – it even had a heart on top! Apple pie is one of Jadan’s favorite desserts, it couldn’t have been more thoughtful and yummy!
Anya started 5th grade today. Happy back to school, Anya! We are looking forward to the back-to-school picnic in a few weeks.
August 5th marked 6 months since Laurie’s death and 2 months since we learned of Jadan’s cancer. This is how we tell time these days. Our experience with loss and serious illness has redefined our relationship with time. In a way, our current reality feels familiar, like we’ve been here before…we have. And at the same time, we are living a new moment in time that unfolds daily, and as we continue to move through the pain of loss. Kulber-Ross and Kessler state, “The pain of loss is so intense, so heartbreaking, because in loving, we deeply connect with another human being, and grief is the reflection of the connection that has been lost,” which in turn becomes “the healing process that ultimately brings us comfort” as we embrace our love in experiencing the pain of loss. Essentially, if we “avoid the pain of loss,” we would need to “avoid the love and the life we shared” (On Grief and Grieving, p. 203). Another quote that resonates deeply is from ‘Abdu’l-Bahá. He states, ” To attain eternal happiness one must suffer. He who has reached the state of self-sacrifice has true joy” (Paris Talks, p. 178). Experiencing Jadan’s cancer journey so close to our experience with Laurie’s cancer journey is dreamlike. It is an opportunity to embrace the love found hidden within our grief in losing Laurie, and, at the same time, it strengthens our understanding of purpose and meaning, as we focus on healing and a full recovery for Jadan’s cancer.
According to this morning’s blood test results, Jadan’s white blood cell count looks good. Dr. Purdy is happy with how Jadan responds to the robot shot from this weekend. However, there was some not-so-good news also. One of the side effects of cisplatin is loss of hearing. Cisplatin is the key to curing Jadan’s cancer. Jadan has had light ringing in his ears a few times this week and noticed a slight change in his hearing that comes and goes. In light of this, Jadan will see an audiologist ASAP to test his hearing. Once we learn the results, we will know the following steps, which may include another medication that will require him to stay in the hospital for the duration of his August 18th week-long chemotherapy treatment. More to come on this new development. In the meantime, we are hopeful that his hearing has not been negatively affected and he can continue on his current treatment plan.
Your prayers and support are greatly appreciated. Thank you to all who sent cards filled with beautiful art, love, and encouragement. Words fall short in expressing our gratitude. I am inspired by Jadan’s courageous spirit and positive attitude. He is committed to being cancer-free and faces each challenge with his zestful smile and determined spirit.
Art inspired by the innate powers and qualities of youth, as stated by ‘Abdu’l-Bahá;
“Man’s life has its springtime and is endowed with marvelous glory. The period of youth is characterized by strength and vigor and stands out as the choicest time in human life. Therefore you should strive day and night so that endowed with heavenly strength, inspired with brilliant motives and aided by His celestial power and heavenly grace and confirmation, you may become the ornaments of the world of humanity, and preeminent among those who are initiated into true learning and the love of God. You must be distinguished amidst men by your sanctity and detachment, loftiness of purpose, magnanimity, determination, noble- mindedness, tenacity, the elevation of your aims and your spiritual qualities; that you may become the means of exaltation and glory for the Cause of God and the dawning places of His heavenly bestowals; that you may conduct yourselves in conformity with the counsels and exhortations of the Blessed Beauty—may my life be offered up for His loved ones—and by reflecting Baha’i qualities and attributes, you may stand out distinguished from others. ‘Abdu’l-Baha eagerly anticipates that each one of you may become even as a fearless lion moving in the pastures of human perfection and a musk-laden breeze wafting over the meads of virtue.”
One of our most significant take-aways from chemotherapy so far – Jadan and the steroid medication do not go well together. He has experienced dizziness from the moment he was given it on day 1. His first night’s sleep went okay until 2:40 am. After some time managing, now feeling well, he was able to return to bed only to wake up early for chemo day 2.
This morning was rough – chills, shakiness, and not feeling well.
Our job is to ensure that Jadan does not experience an allergic reaction to the meds. I checked his temperature—it was normal. We were good to head to treatment.
Jadan’s new best friend, Amanda, had a brand new friendship bracelet ready for Jadan during our check-in. Today’s message was spot on. Even though this morning was difficult, the day had significantly improved.
Once settled into his chair, Jadan told his nurse, pharmacist, and doctor how he felt. It was determined that he was not doing well with his steroid dosage, so the dexamethasone (steroid) was moved from 12 mg to 4 mg. I am happy to report that he didn’t experience any more dizziness. Even better, he enjoyed oatmeal and later had a pesto grilled chicken sandwich handcrafted by Kevin (dad).
Between breakfast and lunch, we had time to play Super Mario Bros on the Switch. The screen was so small that every avatar – good or bad – looked like cute little puppies to me. Thanks to Jadan’s patience and guidance, we could free the poplins (citizens of the flower kingdom) imprisoned by the monster Bowser.
During Jadan’s nap, I found a beautiful metal flower that inspired some art. I used the crescent moon tangle in the shape of a flower. The versatility of the crescent moon is endless. The crescent moon tangle is one of the fundamental tangles to learn. It introduces a technique where you mirror or ‘aura’ the shape of the shaded black ‘bump’. Another method used was shading. This gives contrast to lines, creating the illusion of depth.
To create mindful art through the Zentangle Method, please visit Zen with Zeal: Cultivating mindfulness, healing, and well-being. Tutorial videos are linked, and tangle step-outs are shown in the slide PDF for each tangle used in art created throughout Jadan’s Chemo Journey.
Chemo Day 2 art is grounded in gratitude for the power of love.
“Know thou of a certainty that Love is the secret of God’s holy Dispensation, the manifestation of the All-Merciful, the fountain of spiritual outpourings. Love is heaven’s kindly light, the Holy Spirit’s eternal breath that vivifieth the human soul. Love is the cause of God’s revelation unto man, the vital bond inherent, in accordance with the divine creation, in the realities of things. Love is the one means that ensureth true felicity both in this world and the next. Love is the light that guideth in darkness, the living link that uniteth God with man, that assureth the progress of every illumined soul. Love is the most great law that ruleth this mighty and heavenly cycle, the unique power that bindeth together the divers elements of this material world, the supreme magnetic force that directeth the movements of the spheres in the celestial realms. Love revealeth with unfailing and limitless power the mysteries latent in the universe. Love is the spirit of life unto the adorned body of mankind, the establisher of true civilization in this mortal world, and the shedder of imperishable glory upon every high-aiming race and nation.“